I hate that. “Non-compliant.” Like you’re a toddler or something. Very revealing that it is not a collaboration but a hierarchical relationship. Which I completely disagree with and I think is detrimental to care and outcomes, not to mention dignity.
I hate that. “Non-compliant.” Like you’re a toddler or something. Very revealing that it is not a collaboration but a hierarchical relationship. Which I completely disagree with and I think is detrimental to care and outcomes, not to mention dignity.
To be labeled “non-compliant” is in some ways like being labeled a racist. Dig below the surface and it’s almost always just a silly insult. We need to learn to ignore stuff like that. When I was in NP practice I always wrote “declined” rather than “refused” because it was less judgmental. Patients were the ultimate decision-makers in their care and I wanted the chart to reflect that.
And should you consider a malpractice complaint against one of them ... the lawyers who "specialize in malpractice suits" close ranks fast, and tell you you do not have a valid complaint - with no explanation as to why.
Thirty years ago, my sister was in a car accident. She died at the hospital. She was almost 28, healthy, and had her whole life ahead of her. When we got to the hospital, we were told she was brain dead. The hospital hounded her husband to donate her organs before her heart stopped because “the organs start to decay immediately.” He refused. Mom asked for a second opinion. They gave one, but it was an “I concur with the other doctor,” and the doctor who gave it didn’t even come in the room and talk to us. She had swelling in the brain, but they didn’t give her any anti-inflammatories.
We later found out that she had a broken neck, which was surprising since she wasn’t wearing a neck brace, and that the hospital was an organ harvesting one. (Organ harvesting is big business.)
I’d never been that inclined to trust doctors, but that sealed the deal. All of us believed that they let her die in hopes of getting her organs.
Her death broke my parents, although I didn’t realize it until several years later. It almost broke me. Luckily, I had my family. I loved them and vice versa. We bolstered each other up.
So sorry for your tragic loss! To facilitate organ donation, the definition of death was changed to "brain death" because a beating heart is required to keep the organs alive. Organ donation is big business and big money. Sorry I am so cynical, but these last 3 years have solidified my cynicism.
There’s no need to apologize to me. I’m as cynical, if not more so, than you. Truly, I’m with you 100%. The definition of brain dead has not changed for the past 50 years or more. (I think they defined it in the 60s. They make a crap ton of money with organ transplants and donations. It’s a kill Peter to save Paul situation. If people know this going in, that’s one thing, but most don’t.
Oh wow 😢 That is horrible. How heartbreaking for your whole family, and what a betrayal from the doctors and hospital. I’m so sorry you and your family had to experience that 😞
I hate that. “Non-compliant.” Like you’re a toddler or something. Very revealing that it is not a collaboration but a hierarchical relationship. Which I completely disagree with and I think is detrimental to care and outcomes, not to mention dignity.
To be labeled “non-compliant” is in some ways like being labeled a racist. Dig below the surface and it’s almost always just a silly insult. We need to learn to ignore stuff like that. When I was in NP practice I always wrote “declined” rather than “refused” because it was less judgmental. Patients were the ultimate decision-makers in their care and I wanted the chart to reflect that.
Ha! Ha! 'non-compliant' - 'medication resistant' - 'denier' - and more. All euphemisms for SANE.
I love that!
Most docs have a god complex. They don’t like to be questioned about anything, especially when they are wrong.
And should you consider a malpractice complaint against one of them ... the lawyers who "specialize in malpractice suits" close ranks fast, and tell you you do not have a valid complaint - with no explanation as to why.
Thirty years ago, my sister was in a car accident. She died at the hospital. She was almost 28, healthy, and had her whole life ahead of her. When we got to the hospital, we were told she was brain dead. The hospital hounded her husband to donate her organs before her heart stopped because “the organs start to decay immediately.” He refused. Mom asked for a second opinion. They gave one, but it was an “I concur with the other doctor,” and the doctor who gave it didn’t even come in the room and talk to us. She had swelling in the brain, but they didn’t give her any anti-inflammatories.
We later found out that she had a broken neck, which was surprising since she wasn’t wearing a neck brace, and that the hospital was an organ harvesting one. (Organ harvesting is big business.)
I’d never been that inclined to trust doctors, but that sealed the deal. All of us believed that they let her die in hopes of getting her organs.
That is a heartbreaking story. You are one strong woman to hold all that grief for three decades.
Her death broke my parents, although I didn’t realize it until several years later. It almost broke me. Luckily, I had my family. I loved them and vice versa. We bolstered each other up.
So sorry for your tragic loss! To facilitate organ donation, the definition of death was changed to "brain death" because a beating heart is required to keep the organs alive. Organ donation is big business and big money. Sorry I am so cynical, but these last 3 years have solidified my cynicism.
There’s no need to apologize to me. I’m as cynical, if not more so, than you. Truly, I’m with you 100%. The definition of brain dead has not changed for the past 50 years or more. (I think they defined it in the 60s. They make a crap ton of money with organ transplants and donations. It’s a kill Peter to save Paul situation. If people know this going in, that’s one thing, but most don’t.
Oh wow 😢 That is horrible. How heartbreaking for your whole family, and what a betrayal from the doctors and hospital. I’m so sorry you and your family had to experience that 😞
Yup exactly.